Support
My DIPG Navigator Program
Your Personal Nurse Navigator – You Are Not Alone
A DIPG/DMG diagnosis is overwhelming. There are a lot of decisions to be made in a short period of time.
A tremendous resource is the My DIPG Navigator Program.
The program will provide one-on-one support from a trusted and reliable nurse knowledgeable with DIPG/DMG diagnosis and treatment. Your Personal Navigator will provide the information and support that you need to make the most informed decisions at each and every stage of your DIPG/DMG journey.
The Nurse Navigator will respond to you within 12 hours of your initial request.
All services are provided at no cost.
Visit MY DIPG NAVIGATOR PROGRAM here: https://www.mydipgnavigator.org/
Brain Tumor Board
Have the best in the world review your case
An alliance of families and foundations have recruited the leading DIPG/DMG pediatric neuro oncologists in the nation to work as a team to review your specific case. The credentials of the tumor board members are available at the web page listed below. The service is provided at no charge.
In order to be screened for eligibility a short form is submitted to the Tumor Board Coordinator. The patient, parent, or provider may complete the form. Applicants can expect a response within three (3) working days.
The Tumor Board Coordinator will help obtain the required records and imaging to be included in your review. Once all records are received, the Tumor Board Coordinator will send the provider a date/time to attend a meeting scheduled to review your case. Subsequent to the meeting, the Tumor Board will issue a written report with treatment options. You and your provider can then meet to discuss the report and the next steps for treatment and available trials.
Visit the DIPG/DMG National Tumor Board here: https://dmgnationaltumorboard.org/
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